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1.
BMJ Open ; 13(5): e068790, 2023 05 25.
Artigo em Inglês | MEDLINE | ID: mdl-37230516

RESUMO

INTRODUCTION: Dementia conditions the patient's nutrition from the beginning and vice versa. Generating difficulties for feeding (FEDIF) will influence its evolution. There are currently few nutritional longitudinal studies in people with dementia. Most focus on problems already established. The Edinburgh Feeding Evaluation in Dementia (EdFED) Scale identifies FEDIF of patients with dementia by studying their behaviours while eating or being fed. It also indicates areas of potential clinical interventions. METHODS AND ANALYSIS: Prospective multicentre observational study carried out in nursing homes, Alzheimer's day care centres and primary healthcare centres. The study population will be dyads composed by the patient (diagnosed of dementia, over 65 years of age and who have feeding difficulties) and their family caregiver. Sociodemographic variables and nutritional status (body mass index, Mini Nutritional Assessment, blood test and calf and arm circumference) will be assessed. The Spanish version of the EdFED Scale will be completed and the presence of nursing diagnoses related to feeding behaviours will be collected. Follow-up will take place for 18 months. ETHICS AND DISSEMINATION: All data will be carried out respecting European legislation 2016/679 in data protection, and the Spanish 'Organic Law 3/2018 of December 2005'. The clinical data will be kept segregated and encrypted. The informed consent has been obtained. The research has been authorised by the Costa del Sol Health Care District on 27 February 2020 and the Ethics Committee on 2 March 2021. It has obtained funding from the Junta de Andalucía on 15 February 2021. Findings of the study will be presented at provincial, national and international conferences and published in peer-reviewed journals.


Assuntos
Demência , Desnutrição , Humanos , Seguimentos , Demência/complicações , Estudos Prospectivos , Comportamento Alimentar , Desnutrição/diagnóstico , Desnutrição/epidemiologia , Desnutrição/complicações , Casas de Saúde , Estudos Observacionais como Assunto
2.
J Adv Nurs ; 76(5): 1182-1191, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-32026509

RESUMO

AIMS: The purpose of this paper was to perform a bibliometric analysis of the production of qualitative research in scientific journals through aggregation by levels and to identify factors of diversity, such as types of designs, in qualitative research on the experience of having an intestinal stoma between 2002 and 2018. DESIGN: Descriptive bibliometric study focused on the production of qualitative research on the subject of study, on three levels: micro, meso and macro. METHODS: Databases such as PubMed, CINAHL, Web of Knowledge, Scopus, SciELO, CUIDEN, Lilacs and Google Scholar were used to collect the data, between August - November 2018. RESULTS: Nursing was the main area of knowledge. Brazil was the predominant country of origin. The most productive journal was the Journal of Wound, Ostomy & Continence Nursing. English and Portuguese were the main languages of scientific communication. The number of authors was typically between 2 and 6. Authors conducted descriptive and phenomenological studies. CONCLUSION: The present bibliometric study helps us to map the qualitative research on the experiences of individuals with an intestinal stoma and to understand patterns in the designs, methods, disciplines and journals involved in this area of research. This will allow nurses to have a leading contribution to stoma care at their disposal.


Assuntos
Bibliometria , Estomia/psicologia , Satisfação do Paciente/estatística & dados numéricos , Publicações Periódicas como Assunto/estatística & dados numéricos , Estomas Peritoneais , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa em Enfermagem , Pesquisa Qualitativa
4.
Index enferm ; 22(4): 237-241, oct.-dic. 2013. ilus, tab
Artigo em Espanhol | IBECS | ID: ibc-121312

RESUMO

En España, el modelo social de cuidados y atención a personas en estado de dependencia tiene un claro componente familiar. En este ámbito la cuidadora principal es una figura clave, ya que asume la responsabilidad y el complicado cuidado de la persona dependiente. Las cuidadoras familiares deben afrontar una gran cantidad de tareas y decisiones difíciles, lo que las pone en una situación de alta vulnerabilidad, estrés e incertidumbre que merecen especial atención en la asistencia sanitaria. Desde esta perspectiva, se plantea como objetivo de estudio describir el tipo de afrontamiento que realizan las cuidadoras familiares de pacientes en estado de dependencia severa que no presentan sobrecarga en su rol cuidador, tomando como base para ello la comprensión profunda del significado que posee el cuidado natural para estas personas. Para abordar el objetivo de estudio se hizo uso del relato biográfico; en concreto, se siguió la metodología planteada por Amezcua y Hueso. El análisis de datos muestra la toma de decisiones familiar de forma compartida, el mantenimiento de los roles materno-filial y la reciprocidad como elementos integrantes y básicos del cuidado natural. La participante realiza un cuidado singular y humanizado dirigido a las necesidades concretas de su madre, relacionando la historia de vida, el entorno familiar, social y cultural (AU)


In Spain, the social model of cares and attention to dependent people has got a clear family component. Within this sphere, the main caregiver is a key figure since she assumes the responsibility and the complicated attendance of the dependent person. These caregivers must face up to a great deal of tasks and difficult decisions that put them in a situation of high vulnerability, stress and uncertainty that deserves a special attention in the medical care field. From this point of view, the aim of this study is, on the one hand, the deep understanding of the natural care and, on the other hand, to describe how these relatives that take care of highly dependent patients, but do not feel overloaded with their role, face up to the situation. In order to tackle the aim of the research conducted biographical method. In particular, a biographical account was carried out following, in their construction, the methodology proposed by Amezcua and Hueso. The data analysis shows the shared decision-making of the family, the preservation of the mother-daughter roles and the reciprocity as the integrating and basic elements of the natural care. The participant accomplishes her caregiver role in a singular and humanized way; her cares were aimed at her mother´s concrete needs, linking, this way, the story of her life to the social, cultural and family environment (AU)


Assuntos
Humanos , Cuidadores/tendências , Assistência Domiciliar , Pacientes Domiciliares , Fatores Culturais
5.
Rev Enferm ; 36(4): 48-52, 55-9, 2013 Apr.
Artigo em Espanhol | MEDLINE | ID: mdl-23745493

RESUMO

OBJECTIVES: To identify factors influencing research activity of Andalusian nurses and to find improvement strategies. METHODS: Qualitative research using SWOT analysis (weaknesses, threats, strengths, opportunities). Nurses were selected deliberately in eight groups according to predetermined criteria. Analysis included categorization and relationship of factors and strategies. RESULTS: 81 participants were included in groups of 7-12 range. 45 categories were identified with 212 factors: 12 weaknesses (50 factors), 10 strengths (44 factors), 12 threats (68 factors) and 11 opportunities (50 factors). In addition, 32 categories were identified with 53 strategies: 14 categories of W-T strategies (42 strategies), 3 categories of S-T strategies (11 strategies), 5 categories of W-O strategies (13 strategies) and 10 categories of S-O strategies (41 strategies). CONCLUSION: Nurses identified numerous factors, mainly threats. The strategies are focused on W-T but they also suggest many but weak 5-0 strategies due to the low potential of the opportunities and strengths perceived.


Assuntos
Pesquisa em Enfermagem/normas , Pesquisa Qualitativa , Espanha
6.
Index enferm ; 22(1/2): 83-88, ene.-jun. 2013. tab
Artigo em Espanhol | IBECS | ID: ibc-115001

RESUMO

Las características que sustentan a la investigación cualitativa necesariamente deben repercutir en la presentación y publicación del estudio, que en algunos casos desafía los modelos tradicionales de presentación de trabajos científicos. Tal es el caso del Relato Biográfico, que en la propuesta realizada en este artículo se aparta del modelo tradicional de presentación de estudios originales (IMRYD), para adoptar una estructura propia, más acorde con lo esperado en un diseño biográfico de dominancia descriptiva, donde el discurso del informante ocupa un lugar preeminente. El objetivo de este artículo es poner en manos de los investigadores una herramienta que ayude a estructurar y redactar el informe final procedente de un Relato Biográfico, siguiendo el esquema dual: Introducción (seguido de bibliografía) y Texto biográfico. Esta peculiar estructura plasma la esencia de este diseño de investigación y da cuenta de forma coherente y clara de los hallazgos encontrados y de la metodología empleada para ello (AU)


Characteristics that support qualitative research must necessarily have consequences in presentation and publication of the study. Sometimes they challenge traditional models of scientific papers presentation. That is the case of the biographical account. In the proposal of this article, biographical account draws away from the traditional model of presentation for scientific papers (IMRYD) to adopt an own structure more in line with the expected one in a mainly descriptive biographic design, where the speech of the informant has a predominant place. The objective of this article is to provide a tool that helps researchers to organize and write the final report from a biographical account following the dual scheme: introduction (followed by the bibliography) and the biographical text. This peculiar structure capture the essence of this research design and clearly and coherently shows findings and methodology used for it (AU)


Assuntos
Humanos , Narrativas Pessoais como Assunto , Pesquisa Qualitativa , Relatório de Pesquisa/normas , Pesquisa em Enfermagem Clínica/métodos , Coleta de Dados/métodos
7.
Rev. Rol enferm ; 36(4): 280-291, abr. 2013. tab, ilus
Artigo em Espanhol | IBECS | ID: ibc-113899

RESUMO

Objetivo: identificar factores influyentes en la investigación de las enfermeras andaluzas, y determinar estrategias de mejora. Métodos: estudio cualitativo, mediante análisis DAFO (debilidades, amenazas, fortalezas y oportunidades). Fueron seleccionados ocho grupos de manera intencional, según criterios predeterminados. El análisis incluyó en la categorización y relación de factores y estrategias. Resultados: fueron 81 participantes, en grupos de 7 a 12. Se identificaron 45 categorías con 212 factores: 12 debilidades (50 factores), 10 fortalezas (44 factores), 12 amenazas (68 factores) y 11 oportunidades (50 factores). Además, se determinaron 32 categorías con 53 estrategias: 14 de supervivencia (42 estrategias), 3 de defensa (11 estrategias), 5 de reorientación (13 estrategias) y 10 de potenciación (41 estrategias). Conclusión: se identificaron numerosos factores, destacando las amenazas. Las estrategias propuestas se centran en la supervivencia, aunque también se proponen muchas, pero débiles, estrategias de potenciación debido al bajo potencial de las oportunidades y fortalezas percibidas(AU)


Objectives: To identify factors influencing research activity of andalusian nurses and to find improvement strategies. Methods: Qualitative research using SWOT analysis (weaknesses, threats, strengths, opportunities). Nurses were selected deliberately in eight groups according to predetermined criteria. Analysis included categorization and relationship of factors and strategies. Results: 81 participants were included in groups of 7-12 range. 45 categories were identified with 212 factors: 12 weaknesses (50 factors), 10 strengths (44 factors), 12 threats (68 factors) and 11 opportunities (50 factors). In addition, 32 categories were identified with 53 strategies: 14 categories of W-T strategies (42 strategies), 3 categories of S-T strategies (11 strategies), 5 categories of W-O strategies (13 strategies) and 10 categories of S-O strategies (41 strategies). Conclusion: Nurses identified numerous factors, mainly threats. The strategies are focused on W-T, but they also suggest many but weak S-O strategies due to the low potential of the opportunities and strengths perceived(AU)


Assuntos
Humanos , Masculino , Feminino , Sobrevivência/fisiologia , Ameaças/métodos , Vulnerabilidade a Desastres/métodos , Educação em Enfermagem/tendências , Educação Continuada em Enfermagem/organização & administração , Melhoramento Biomédico/métodos , Melhoramento Biomédico/normas , Melhoria de Qualidade/organização & administração , Melhoria de Qualidade/normas , Melhoria de Qualidade , 25783/métodos , 25783/estatística & dados numéricos , Análise de Sobrevida , Taxa de Sobrevida , Razão de Chances
9.
Index enferm ; 20(4): 233-237, oct.-dic. 2011.
Artigo em Espanhol | IBECS | ID: ibc-102959

RESUMO

La enfermera posee un papel determinante a la hora de reorientar las políticas de relaciones con los familiares de pacientes críticos y replantear estrategias en la flexibilización de las visitas. Teniendo en cuenta este aspecto, se analizó mediante un estudio de caso con método biográfico el fenómeno del acompañamiento familiar al paciente moribundo ingresado en esta área desde la perspectiva enfermera. La técnica de recogida de datos empleada fue la entrevista en profundidad. La entrevista fue grabada y transcrita literalmente. Los datos recogidos fueron verificados por la informante y analizados siguiendo los pasos propuestos por Taylor-Bogdan. La categoría central que emerge del análisis del discurso es la conceptualización de las debilidades y amenazas en torno al acompañamiento familiar, que la informante percibe en forma de barreras y relaciona con sus propias creencias y valores, con el rol de la familia en la sociedad actual y con posibles soluciones a los problemas percibidos. La principal barrera documentada tiene que ver con la falta de conexión entre la información que reciben los familiares y la que poseen los profesionales de enfermería con respecto al área de información médica. Los resultados de este estudio esclarecen las dificultades que tienen las enfermeras de las unidades de cuidados críticos a la hora de atender a las familias cuyos miembros están en proceso de muerte. Deberíamos optar por modelos centrados en la relación paciente-familia aunque suponga un desafío para la cultura biomédica actual (AU)


Nurses have a detrimental roll when reorientation the relationships with relatives of intensive care patient's, and reorganizing strategies for the patient visiting hours, especially for moribund patients. Taking into account these aspects and the high incidence of death in intensive care units, it would be interesting to study the phenomenon of accompaniment of dying patients admitted in these units, from the nursing staffs' perspective. A case study has been carried out with bibliographic method. An in-depth interview as the technique used for compiling information. The interview was recorded and literally transcribed. The information obtained was verified by the informant and analyzed according to the steps proposed by Taylor-Bogdan. The principal category that emerges from the analysis of the speech is the conceptualization of the weaknesses and threats surrounding the accompaniment of moribund patients, which the informant perceives as barriers and relates it with her own beliefs and values, with family roll in today's society and those that the nursing professionals have regarding the area of medical information. The principal barrier documented is the lack of connection between the information that the relative receive and the information that the nursing staff have regarding medical information. The results of this study clarify the difficulty that nurses in critical care units encounter when attending relatives of patients who are in the process of death. We should opt for models which are centred on relations-patient-relative, although this may be perceived as a treat for today's biomedical culture (AU)


Assuntos
Humanos , Cuidados Críticos/métodos , Acompanhantes Formais em Exames Físicos , Direito a Morrer , Cuidados de Enfermagem/métodos , Visitas a Pacientes , Pesquisa Qualitativa , Relações Profissional-Família , Relações Familiares , Assistência Centrada no Paciente/organização & administração
10.
Index enferm ; 19(2/3): 191-195, sept. 2010.
Artigo em Espanhol | IBECS | ID: ibc-95597

RESUMO

El envejecimiento de la población ha traído consigo un cambio en el tipo de enfermedades subyacentes que padecen los usuarios de los servicios sanitarios, y ha elevado sustancialmente la tasa de mortalidad de los servicios de medicina intensiva de los países desarrollados. Esta circunstancia ha incentivado la inclusión de herramientas típicas de la medicina paliativa (centrada en el confort del paciente) en las unidades de cuidados intensivos (centradas en la curación). La inclusión de estas herramientas no está resultando tarea fácil, puesto que al imperativo tecnológico dominante en este tipo de unidades, se le suman los condicionamientos sociales y culturales de la época moderna. En este artículo se presenta la perspectiva fenomenológica de la muerte en la unidad de cuidados intensivos, vista por una enfermera con experiencia en el campo de la medicina paliativa. En su narración se entrecruzan las creencias, vivencias y sentimientos que estas dos disciplinas han suscitado en la informante (AU)


The ageing of the population has introduced a change in the type of underlying diseases of the clients of the health services, and has increased substantially the mortality rate in the units of intensive care in the developed countries. This event has increased the need of including tools and specific care of palliative medicine (cantered in providing patient comfort) in the intensive care units (which were aimed to heal). The incorporation of these tools is not turning out to be an easy as this area has been very technological, and now a days has to take into account the modern, cultural and social changes. This article presents the phenomenological perspective of death in the intensive care units, as seen by a nurse with experience in palliative care. In her story we can see the beliefs, feelings and experiences that these two disciplines have awoken in this informer (AU)


Assuntos
Humanos , Cuidados Paliativos , Cuidados Críticos , Atitude Frente a Morte , Dinâmica Populacional , Pesquisa Qualitativa , Unidades de Terapia Intensiva/estatística & dados numéricos
11.
Index enferm ; 19(2/3): 226-228, sept. 2010.
Artigo em Espanhol | IBECS | ID: ibc-95604

RESUMO

Justificación. La insuficiencia cardiaca (IC) sigue aumentando en incidencia y prevalencia en los países desarrollados, lo que se traduce en un consumo importante de recursos sanitarios y en una de las principales causas asociadas a la discapacidad. Las directrices básicas de atención a estos pacientes se centran en actividades de autocuidados, tales como la toma de medicación prescrita de forma adecuada y el control del peso corporal diario. La buena adherencia, o la participación activa y coherente en el autocuidado, se asocian con mejores resultados clínicos, incluyendo la disminución de la frecuencia y la gravedad de las reagudizaciones e ingresos hospitalarios, y reducción de la tasa de mortalidad. A pesar de los beneficios conocidos de las estrategias de autocuidado para la gestión de los síntomas de la insuficiencia cardiaca, la mayoría de los pacientes son incapaces de realizar actividades de cuidado personal con éxito. De aquí la importancia de investigar los motivos de esta falta de adherencia al tratamiento domiciliario.Objetivo. Examinar la comunicación entre médicos y pacientes con IC sobre las recomendaciones al alta que éstos reciben, con la intención de conocer cómo experimentan y entienden estas recomendaciones ambas partes.Diseño. Estudio cualitativo de carácter descriptivo.Emplazamiento. Duke University Hospital. Durham, Carolina del Norte. EEUU (AU)


No disponible


Assuntos
Humanos , Insuficiência Cardíaca/terapia , Continuidade da Assistência ao Paciente , Alta do Paciente , Enfermagem Baseada em Evidências
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